Oral health and Epilepsy

Taking care of your teeth is important for everyone, but it can be particularly challenging if you live with a condition that causes involuntary clenching or grinding of your teeth. Did you know that dentin, the substance that makes up the bulk of your teeth, is the hardest substance in your body (with bone coming in second)? When you have a medical condition like seizures, it’s essential to take extra care of your oral health to avoid injuries and long-term damage. In this post, we’ll explore some practical tips to help you care for your oral health.

Photo by Pixabay

Find a good dentist. Having a good dentist as a part of your healthcare team is crucial when dealing with a chronic illness that affects your oral health. Be sure to inform your dentist of all your medical conditions. Seizures themselves can cause oral injuries. Some anticonvulsant medications have oral health side effects. Working closely with your dentist, you can help make a plan for oral health that fits your unique situation.

Get a mouth guard. Using a mouth guard can be a game-changer if you experience clenching or grinding of your teeth due to seizures. Your dentist can customize a mouth guard specifically to your mouth and needs, or you can buy one over-the-counter and custom-fit it yourself. Your dental insurance may even cover the cost of your guard, or at least reduce it. If you choose to buy one over-the-counter, just know that getting the perfect fit takes a lot of patience so be sure to read instructions that come with the kit.

A mouth guard can help prevent irreversible enamel damage caused by seizures, as well as prevent any further wear and tear on your molars. Talk to your medical professional to see if a mouth guard would be beneficial for you, and don’t hesitate to ask your dentist for advice on choosing the right type of mouth guard for your needs.

Use an Electric Toothbrush. Using an electric toothbrush can make brushing easier and more effective, especially when you’re dealing with a medical condition that affects your oral health. The oscillating and rotating motion of an electric toothbrush can help remove more plaque and bacteria from your teeth, giving you a cleaner, healthier smile. If you can afford the luxury of an electric toothbrush, it’s worth investing in one. Look for one that has soft bristles and multiple speed settings, and consider getting one with a timer to help you brush for the recommended two minutes. With proper use and care, an electric toothbrush can last for years, making it a smart investment in your oral health. Just don’t neglect to floss just because you have a fancy new tool!

Mint Green Electric Toothbrush
Photo by Cristi Ursea on Unsplash

What is the best thing that you have done for your oral health? Do you see the dentist at least once a year like the American Dental Association recommends? Comment below!

5 Things to Keep You Safe During Reopening

The world is beginning to open back up. However, this does not mean that the virus is gone and everyone is safe again. Here are 5 simple things to keep yourself as safe as possible while entering into the new world.

  1. Practice good hand hygiene. You have done so well in the past 2 months teaching yourself to wash your hands efficiently and completely. Don’t let that great habit die! 
  1. Continue to wear your mask while in public. Don’t touch your face or mask unless you have freshly washed hands.
  1. Keep physically distanced in public spaces. Is the beach absolutely packed and you have to sit within 3 feet of 3 different groups of people? Maybe you can soak up the ocean fun another day. Be flexible on your adventures, and aim for more open space and less crowded places. It may be disappointing that plan A was a no-go, but plan B is just as exciting! Just be sure to plan for both before leaving the house.
  1. Take advantage of contactless pick up/ delivery. As more people are out and about, more people are exposed. It is great that your favorite restaurant is back in business; but the best way to support the community is to keep yourself and others safe and healthy.
  1. Trust your gut. Only you know what is safe, and what is too risky for you. Don’t feel pressured by friends and family to go out if you feel like it is too soon. Be honest to the people in your life; if they love you, they will understand.

What are your plans now that things are opening up? Feel free to share in the comments.

Dog Days of Quarantine

Physical (formerly known as social) distancing is important to keeping yourself safe and healthy. However, it can get lonely, and let’s admit, even downright boring staying at home. We at least have the ability to watch movies, cook, bake, and play games to keep us from going stir crazy. But what about Fido?

We must remember our furry friends during this isolation process. Filling their basic needs of shelter love and food, may not be enough during this time. Meaningful interactions and continuing to maintain social order in the home help keep your dog calm and less anxious through this big change in his life.

Routine

Routine is important for dogs. Now that we find ourselves at home for a large amount of time we need to establish new routines. Did you used to feed your dog every morning right after you showered? Maybe you can incorporate the same ritual but in different steps. 

Now that you are waking up later, you can feed the dog right when you wake up. This gives you time to hang out in your PJs and drink a cup of Joe before you shower. It may take some time for doggo to get used to, but in time he will realize this is the new normal. 

Walk

Although we are practicing social distancing, most of us in the United States are still allowed to leave the house recreationally. This means we can take a S-T-R-O-L-L! We have to spell the word “stroll” because the dog now knows how to spell walk, and knows what it means. Scary, sometimes, how smart they are, right?

If you decide to take that walk, be sure you pass people on the sidewalk with at least 6ft between. Do not go to dog parks, or other highly visited spaces. 

Play

Although we cannot visit public spaces like dog parks, it does not mean that Fido cannot get the excitement of play. They need the mental and physical stimulation in order to regulate their behavior at home.

A longer walk can tire Fido out. If you take a longer walk, be sure to listen to your dog’s body language and not expect too much from him in the beginning, if he is not in shape. Work up slowly to longer walks. 

For a change in pace, try a short activity at a higher energy level. Maybe you have been itching to dust off those old roller-blades, skate boards, or even bikes out for Pups to run beside. Be sure you teach him how to join you safely to avoid getting tangled up. Don’t forget your safety gear! While you both are having fun, be sure to pay attention to his body language to know when to stop, and let him set the pace.

Bath

Hygiene is imperative, more so now than ever, and not just for those of us without paws. A dog’s skin health is a big influence in overall happiness. Perhaps you took Puppers to the groomer every week. Now that you are sheltering in place, a trip to the groomer is not feasible. 

If an outside bath is possible, try to reduce water waste by running the hose in the lawn, or dumping bath buckets in the garden. Before putting the used water in the lawn or garden, check to see if your dog shampoo is safe for plants.

Perhaps an indoor bath is preferred. If bathing in a sink or bathtub, clean the surfaces after use and check drains for hair clogs. At my house, my husband has to pull out the big clogs – I just don’t have the stomach for it!

Treats

Speaking of stomach… It is hard to resist those puppy dog eyes! I know I have fallen victim to them plenty of times. But we must resist. In order to keep Dog at a healthy weight, we can not overdo it with constant treats. 

Encourage good behavior with treats. Use treats to teach a new trick or brush up on service dog assistant tasks.  As long as treat giving remains constructive, it is unlikely that you will overdo or over indulge.

Personal Space 

Personal space is something that is important to us all. Having the family home all day can be stressful on your dog. We need to respect their personal space as we expect them to respect ours. Love and affection is wonderful to give a dog again but make sure to notice their behavior and understand when they need a little bit more space.

A Brave, New World

We all wish that we could speak to our animal and explain what is going on in the world. We want to tell them that although we are stressed and scared there is no reason for him to be, because we will keep him safe. But we cannot speak to them, which is why it is so important to let our actions do the communicating.

It is a weird, weird world, and it is constantly changing. For the foreseeable future, this is the new normal. If we remain confident our furry family will settle in with us.

Because the best way to lead is by example.

Purple Day and Pandemic 2020

It is scary living with a chronic, uncontrolled illness on a normal day. With the emergence of COVID-19 (coronavirus), it is easy to feel incapacitated.

The need to put your health care first, especially when you have loved ones that need care also, can be difficult. This conundrum has put me in a tough situation. 

The smart doctors and scientists of the world are recommending physical (previously called social) distancing, and to self-isolate if you have symptoms. I don’t have symptoms – yet. And I am not kidding myself by thinking I will not get sick from this.

They are estimating 50% of people will get COVID-19. If I look at my household, between my husband and I… I will be the one to get sick. 

However, I think the best thing I could do right now is to stay at home, isolate myself for at least the next two weeks, and wait to see how the world is then, to make a plan moving forward. Seems really safe, right? 

Not actually. 

My husband still is going to work, as he works an essential job and is at low risk of infection. Because he is my main caretaker, he is the one having to go get my medications, and the household supplies. That puts him out there.

That means he is at a higher risk of contracting the virus, period. Then he comes home to me. We have a “decontamination room” at the back of the house where he strips down and sanitizes. That can only do so much. 

Regardless, he has still been exposed and therefore is exposing me to the virus just by being in the house. Not to mention our wanting to snog transfers all viruses and cooties. 

So where do we draw the line? Where do we find the comfort of “I’m doing everything I can” and keep the practicality of “I still have to live my life.” 

Maybe just holding on to the hope that the majority of the world is also practicing social distancing and washing their hands frequently and effectively, is all that we have right now.

Please, consider sending a text, a tweet, a DM, or video call to the people in your life that you know are supporting people in the high risk group. Thank them for helping reduce the curve. And a big thanks to you, if you are that person.

It is fortunate that I have a job that I can do – fairly well – from home. But it puts a burden on my fellow staff to pick up the slack on all the physical work that I’m no longer there to do.

I am ashamed telling my boss that I have to stay home; because I’m too scared of dying of SUDEP because the strain that getting sick puts on my uncontrolled brain. I need to thank them more, for holding the front lines, and being so understanding.

I want to thank my friends, my in-laws, and my parents, for not taking it personally when I tell them I can’t physically be with them for the unforeseeable future. I appreciate and love all of them.

I hope you feel that kind of support from the people in your life. 

Who do you appreciate the most right now? What do you find most difficult in these troubling times? Share with us in the comments.

Hello World!

This is my first post so bear with me!

Nice to see you here! My name is Sāb (like babe but with an S). I have epilepsy with unusual seizure activity. It is uncontrolled and medication resistant.

Why did I tell you this, before anything else about me?

  • Because I thought it defined me.
  • Because I used to keep it a secret, thinking it was something to be ashamed about.

But that is a thing of the past! I now realize that although epilepsy has a big impact on my life, I have no reason to hide or be apologetic. It was a long journey to get here, and my adventure is not over.

I think it is important to recognize that it is an amazing feat, and I would love to share my experiences with you. My lessons learned, my “should’a, would’a, could’a’s” and future endeavors are the types of things I hope to publish.

Maybe you or a loved one have epilepsy, or some other chronic illness. You may find something of value hidden in my pages. I sure hope so.

I must admit, I have hoped to find some comfort out here in the infinite internet. If you have too, and you landed here, maybe there is a reason. I would love to connect.

So who am I really?

  • My educational background is in engineering
  • I have a wonderful and supportive family
  • I love to ice skate
  • My favorite place in the United States is the White Mountains in New Hampshire
  • I am looking into going back to school (for a mid-life career change)

Okay, those are just facts, not really allowing you to know the “real” me. I suppose that if you would like to get to know me, you can read my blog. Shoot, you can even contact me, and we can build a real friendship!

Regardless, I am hoping that you are willing to take this wild ride called life with me.

Stay tuned for the next episode (yes that was a seizure joke).